Friday, June 26, 2015

New York Stories

I’ve been writing this all over the course of three days. I still struggle to understand just the names, dates, places, and facts of this experience that I’m trying to describe below. Even more difficult to understand are the much larger issues of the spirit of this experience. I hate to use the word ‘overwhelmed,’ because it just doesn’t adequately explain all of the emotion we’ve experienced. At some point I think those words will come.

All of this is happening in the context of scans coming up tomorrow. I am always nervous about this. I am more nervous about it in the context of a conversation I had with a friend at Kroger the other night. He’s a member of a special little tribe with me, and one of the things that we’ve both learned is that lives generally have ups and downs that are proportional, and that the trick in life is bringing all of it back to a tenable center.

Call it karma. Call it fate. Call it whatever you like. I have tried really, really hard not to get TOO 'up' through the past two weeks with the spectre of a 'down' on the horizon. But all of that is in the future. Here’s the story of the past four days.

###

The past four days have been so busy, so magical, and so deeply spiritual that it is hard to even get my mind wrapped around it all. I haven’t been able to process it through to write it with a theme in mind, or some kind of really great hook. I also want to reply to EVERYONE who has shared something, and asked questions about what’s been going on, and eventually, I will, but as we move into what might be two of the only four weeks we’re all at home at the same time this summer, I am trying to cram a lot into our days!!! So here’s the long-ish version of what have been four of the most unique days our family’s spent together. And I WILL get in touch with all of you eventually!!

Two weeks ago today, we found out the Today show thing was a possibility, and one week ago we were really, really sure it was going to happen. With that, last week became a frenzy of answering questions from New York, sending pictures through, and then talking with people in local media about the upcoming experience. At the same time, we were all trying to figure out: Who has pants that are decent for television? Whose armpits are too stained (that would be me)? Concurrent with all that, I had 23 kids I needed to get through the social studies OGT! I was definitely in the mode of not even thinking, just moving from one task to the next.

So Thursday afternoon, I get a call from a guy with a phone number from up by mom and dad’s cottage. He said he was from a courier service, and had a package to drop off. As I talked to him, I had that pit-of-the-stomach feeling that it had to be something bad; collection from the Clinic, collection on other med bills, or, best-case scenario, registered delivery papers from the bank on our re-fi (fingers still crossed). Ellie was convinced it was Volvo, hooking us up with an Ingrid replacement. I allowed myself five seconds of daydream on that. Friday afternoon, I was driving back home after OGTs, and on the phone with mom, and she told me that dad was heading up to the lake, because they were supposed to drop off the re-habbed engine to our old float boat up there. I said to her, my God! The courier who called me the other day had a Williams County number! I wonder if they found my name, and they’re bringing the outboard engine over to my house?! And then I'm panicking, thinking, holy crap! How am I gonna get an outboard engine up to the cottage?!

You all know where the story went from there. Joe Brenner from Thayer shows up in our drive with Angel, from an Angel. Friday afternoon becomes a fantasy whirlwind, and at 4:40 when we get home from the dealership we realize, holy cow: We still have to pack for tomorrow morning!

Friday night was about as frenzied as you can imagine, as we threw together enough clothing options to be ready for any eventuality, and then tried to calm our hearts and heads for a halfway decent night of sleep before an 0430 alarm so we could make it to DTW for an 8 am flight!

Blessedly, we got up and moving without too many spazz-outs, and caught our plane with time to spare. The magic of the weekend started as soon as Mark and I got to our seats in the very last row of the CRJ. The flight attendant at the back, Alex, saw Mark’s Indians t-shirt, and approved. He asked us where we were from, and told us he was a West Sider. We talked Tribe and Browns in between his duties. Halfway through the flight, he tells Mark, “I have someone for you on the phone,” and hands Mark the intercom phone. Mark talks to the pilot for a couple minutes, and then hands the receiver back to Alex, who tells us to wait around when the cabin clears, and Mark can go up to sit with the pilots.

We make our approach into Newark, and the Manhattan skyline unfolds on our side of the plane. I point out the skyscrapers to Mark, and he’s not so impressed. The container yards and cranes, on the other hand, have him absolutely enraptured! The plane lands, people get off, and Mark and I go forward with Alex. The pilot gets out, lets Mark crawl up into the seat, and this kid’s grin goes ear to ear. When we walk up the jetway, Katie and the other two are wondering where the hell we’ve been until they see that smile, and a very silver pair of wings pinned to Mark’s shirt!
A guy in a well-tailored black suit is waiting for us at the bottom of the escalator with a sign with our names. It’s the second-best arrival I’ve ever made in another city, the first-best being Jason Peiffer waiting for me at Gulfport, Miss. 15 Mardi Gras ago, with my name written “BOIL” in magic marker on the back side of a ripped up Bud Light 12-pack.

We hop into a giant Escalade, and fly through Jersey, kids agog at the skyline, into the Lincoln Tunnel, and emerge in Manhattan. The kids are instantly on 11: “Look!! Pigeons!!! They’re everywhere!!!” “Dad, I think this is where Sesame Street is!” “Hey! People actually have dogs here!”

We arrive at the Crowne Plaza Times Square around 11, and we’re already exhausted. We check our bags while waiting for our 3 pm check-in, and up the escalator comes another of our angels, Kristin Stadum. A couple hours later, on the subway, a random stranger asks Kristin if we’re family, and I tell him “May as well be!” How long have we been friends now? More than half our lives. She came up on the bus the night before, and not only could we not have asked for better companionship, we couldn’t have asked for a better guide. She vectors us to a little hole in the wall Italian restaurant, and we all have a hearty, awesome meal before going ‘splorin.

After lunch, we catch a train down toward the World Trade Center. We angle over toward St. Paul’s Chapel, and the haze of the last day of Spring obscures the top of the Freedom Tower. Through a construction walkway, we make our way to the memorial. We try to explain 9-11 to the kids. It’s really hard to explain 9-11 to kids.

We cut over toward Federal Hall, and I take the kids up to the steps, and try to paint the scene of Washington’s inauguration, and the procession from Federal Hall down to Fraunce’s Tavern. Down Broad Street we go, desperately searching for a restroom for Mark – which will be a recurring theme the next 28 hours!!! The kids roll their eyes at each photo op, from Bowling Green station, to Castle Clinton, until we finally get one of those “WHOA”s that parents and teachers secretly delight in. They look across the river and see the Statue of Liberty, and Joey starts popping around the sidewalk like a set of firecrackers. It’s a pretty great moment.
 

The adults sit down for a while near Castle Clinton, and the boys chase pigeons. They are big fans of pigeons. Ellie and I walk down to the Merchant Marine Memorial, and eventually we all walk over toward the ABMC East Coast Memorial Tablets. So. Many. Names.

Around the tip of Manhattan we go, and get the kids a glimpse of the heliport and the Brooklyn Bridge, before catching a train back to Times Square. Kristin and Ellie lead us through the crowd, hand in hand, and my heart smiles. We get back to the hotel, Kristin meets a friend, and Katie and I nap. The kids, full of the nervous energy of a city that never sleeps, don’t. We grab dinner in the lobby, and then head back out on the town at night. First, Radio City and Rockefeller Center. A brief glimpse inside the Today studios to see what we’re getting into in the morning; a walk-around on Fifth Avenue, a hike over toward Stark Tower, or if you’re into ‘reality,’ the MetLife building. I screw up the directions. Kristin saves the day (again). We walk through the MetLife building, we go down an escalator, and I have an amazing moment of déjà vu from a dozen years earlier, as I waited at the bottom of this escalator for Chris to get off work!
We find bathrooms, again. I point out the location where Hulk punched Thor. Katie, the voice of reason, says we gotta get back to the hotel before we turn into pumpkins. I get switched up, again. We double time back to the hotel, and I can feel my fatigue coursing through from my core. My legs start getting heavy, and my head starts to throb. Even the boys are complaining of being tired… and they never get tired.

The boys and I pass out in our room. Throughout the night, I wake up with nightmare after nightmare of being late, or missing the show entirely. Six o’clock rolls around and the alarm dutifully goes off. The boys and I get ready, which thank God, consisted of putting on T-shirts and shorts. We meet up with the girls, who look a lot nicer than us, and mosey down to the garage where another black Escalade picks us up for the short hop over to NBC. The SUV slides to a stop in front of the studio doors, and we get whisked into the security desk. 

We get checked off “the list,” and led down a gorgeous, golden curved staircase to the basement of Rockefeller Center. Gorgeous, 1930s-era murals of transportation surrounded us. We checked into one green room first, then were taken upstairs to a second green room. As they hustled us in, I saw a coat rack, with stick-on labels for “Matt,” “Savannah,” “Al.” I asked for the bathroom, quick. Turns out I haven’t outgrown the old nervous poops. We tried to figure out where we were, because we could see out to the street, and the street could see into us! I texted Kristin – who had used her airline miles to get my sister in for the show! – and told them what window to look for. When I saw them, I instantly felt less nervous about everything!

People came and went from the green room, and at about 7:30, the pace and tone of everything intensified. Sound guys hooked us up with mics, the makeup artists took Katie and I upstairs a couple levels to get us squared away. We made faces at Kathy and Kristin, and met a guy named Zack, who caught A-Rod’s 3,000th hit, along with, apparently, some 8,000 other baseballs over the years. He was a hell of a character, and kept us entertained with stories as the hair and makeup people finished with Katie. The show was underway out on the plaza, and we saw young hipster barbers working some sort of magic on bald guys. A big grill was set up for a food segment. And the whole time, I was watching this digital clock counting us closer to 8:30, and getting really, really nervous.

Maybe around 8:20, we were escorted to the backstage area. Lump in my throat was the size of an orange. They brought us out to the couch to settle in. We were bug-eyed. The cameras were much bigger, and the studio much smaller, than I ever imagined. One of the cameramen came over to talk with me, a cancer survivor himself, with a happy ending. God, I love cancer stories with happy endings!!!
Craig Melvin and Erica Hill stride into the studio from their outside shot, cameras move around, a director puts us in place in front of the windows, and quick introductions are made. I have no idea at all what to do with my hands. The anchors introduce the piece, and cut to tape. We see the tape rolling, and it is absolutely surreal to see my life flashing on screens before my eyes. They come back to us live. I think I’m talking, but not sure. I hope that I’m making sense. I quote Fred Beier with a little “true story.” And then they start to spring the surprises. Before we left, the most popular parlor game among our friends was “Why is Today flying you guys to NYC? Why not just do the taped story?” Some thought it would be an Oprah moment with a car for you! And you! And you! I was still convinced New York was the ‘big prize,’ after all, this was a pretty damned expensive trip for NBC to fly us all out there and put us up!

You all know what the surprises were. I sort of wondered if Captain America would be part of our day, so I was surprised, but not shocked when Cap walked onto the set. But I was absolutely flabbergasted when he told us we’d be going to the filming of Civil War. If you’re a big enough comic nerd, you know that ABCDisney ownes the Marvel Cinematic Universe franchises, and I was kind of processing “BUT HOW DID NBC PULL OFF THIS????” when they came out with the Indians surprise, and said ‘…first pitch…’ and at that point, I don’t think I even knew what my own name was, and then they hand me the jersey, and asked whose number it was… and I blanked. Bad. Thank GOD Katie was right there and picked up on something Caroline had off-handedly mentioned to her about Cory Snyder. Katie whispers a prompt, and then I’m like, OF COURSE! CORY SNYDER! And, then, HOLY CRAP. I’m going to meet Cory Snyder!

Vinny wrote me something afterward along the lines of, ‘the 12-year-old you just had the best day of his life – Captain America and Cory Snyder’ – and he’s absolutely right. And let me say, for the record, that the 40-year-old me would trade all of that in a hot second to not have cancer!!!! (And I mean it. If my scans are clean on Thursday, they need to pick someone else for all of this!!!)

Just as soon as it was started, it was over, and the anchors moved over to the couch area, and we were trying to be as quiet as church mice, whispering back and forth with Captain America, and getting pics of the kids holding his shield, and waving out to Kristin and Kathy and blowing kisses. Caroline walked us back to the green room, and Lester Holt was sitting on the couch as they broke out the champagne for his last Weekend Today. He said “hi” and “Good luck” to us, and all I could come up with was a cheery “Hi, Lester!”

On our way back, Caroline introduced us to a rep from Marvel, who had a goodie bag of shirts, bobbleheads, and Captain America figures for us. And just like that, it was all over. Caroline walked us out to the plaza, and I ran across to hug Kristin and Kathy.
And that’s when I finally cried. That’s when it all caught up with me.

We got a car back to the hotel; Kristin and Kathy beat us on foot. We checked out of the hotel, and walked to Ellen’s Stardust Diner. The entertainment was great; the chocolate chip pancakes better than I make at home, and a waiter came through finding the birthday people, and we volunteered Mark – who was a champ, and spoke loudly and clearly into the mic! After lunch, Kathy and Kristin left to check out of their apartment, as Katie and the kids and I worked our way up Fifth Avenue to the soon-to-close FAO Schwarz. The toy soldier guards were awesome with the kids, and inside, it was hard even as an adult to contain your glee. Men flipping little foam planes sucked us in, and hell, we bought one. Kristin and Katie caught back up with us, and we said goodbye to Kristin as she headed back downtown to get the Bolt back to DC.

Down Fifth Avenue we walked, past Gucci, Armani, and lots of places so fancy I have never heard of them. We went into American Girl so Ellie could look around and dream, and then the LEGO Store so the boys (and this big boy) could dream! Around the corner was the FDNY experience, and we got to talk with a couple of firefighters who work this educational mission, and sell FDNY merchandise on the side (and seriously, what better souvenir can you buy than something from the fire department?!)

We walked back to the hotel, and cooled our heels in the lobby. Ellie and I made a mad dash out into Times Square to get I (heart) NY shirts, and then we all walked a mile across the island to see the USS INTREPID. No sooner had we gotten to the ship, and our car for the airport called. He’d arrived early, and we hot-footed it back to the hotel, grabbed our bags, and dripping in sweat, hopped in the car, snaked through traffic on the east side of Manhattan, and made it to LaGuardia with time to spare.

And with that, a plane, a delay, a flight, a drive, and then home. Such an adventure. Such blessings. 

Saturday, June 13, 2015

Father's Day

I think it was at Uncle Tim's house, the old one, that there was a little thing in the bathroom that said "Any man can be a father, but it takes someone special to be a dad." And even if that wasn't at Uncle Tim's, it may as well have been, because he's one of the best dads I know, and he's one of the first people I think of whenever I see that saying. 

In fact, there are a lot of best dads I know, starting with my own dad, who worked, and works, tirelessly to provide, past exhaustion, past any reasonable limits, and provides guidance, love, and more love. Katie's dad, who is the most unflappable human being I know. My brother in law, Aaron. I think of both of my grandfathers; I think of my uncles. I think of Uncle Harvey - FATHER Harvey, who was a dad to hundreds of boys in Monroeville and Norwalk over his decades of service to the Church. Uncle Paul, another dad to me from beyond the grave. My cousins, especially Danny, who is the single best dad I know, or can even imagine. I think of so many of my pals from high school, old dads and new (REALLY new, Patrick Kennedy, Josh Kaufmann, Neil McElroy, Colin McGinnis!!!) who are great dads. Colleagues, neighbors, friends. Guys I see teaching their kids how to hit their woods at the country club (sorry, Ellie, Joey, and Mark, you got the wrong dad for that). JD, doting over the dance shows, dads of students I've had. And I have a sneaking suspicion that all of them have the same little nagging thing in the back of their heads that I do:

Dear Lord; PLEASE do not let me be completely $%&ing this up. 

I take the role of dad more seriously than anything else, be it with my three biologic kids, or with some of the incredible kids that have come through my classroom and into my heart over the years. But I know that I get it wrong more often than I get it right. Sneaking them pop. Stealth missions for a small vanilla cone with rainbow sprinkles. Teaching them colorful new vocabulary words while working on the car. Or the plumbing. Or with a hammer. Or the TV. Or shelving books. Or cutting onions. Um, yeah, you get the idea. 

So, it's not with just with the humility of knowing damn well that I fail more often than I succeed as a dad, but with absolute shock and bewilderment that the following series of events went down the way they did over the past 96 hours or so. 

Last December, when I decided to run the Mohican 50 as a fundraiser for Dr. Rini's research at Cleveland Clinic, I got put in touch with Chelsea, in the Foundation's giving office, and Katrina, in communications. Chelsea helped with the back-end organizing part of the ultra fundraiser, and was the brains of reaching out to larger donors to find a way to really generate some substantial money for the mission of beating kidney cancer, maybe not in my lifetime, but laying a foundation for down the road. Katrina was trying to get the story to media outlets to consider as a feature, and drive the mission a little further. Well, of course there were the unpleasant (unpleasant enough that I still don't want to talk about them) problems I had that sidelined me from running throughout March and most of April, and then two weeks after I started running again to get training back up to speed, I had the stress fracture in my left tibia. I told Chelsea and Katrina, well, you know, ballgame. It's over. Maybe I'll try for an Olympic Triathlon in the late summer or something, but the Mohican 50 isn't happening. So the event was off, stories were off. No big deal.

Except they weren't.

Monday, just before the end of my summer school day, I had a text message from Katrina to call ASAP. NBC's Today Show wants to do a story on you for Fathers' Day, comic-book-nerd-dad-with-cancer-angle. I texted back, "ARE YOU SERIOUS?" 

The speed with which this moved after that was breakneck. On Tuesday, I had a phone interview with a producer named Caroline, who is just awesome. Talked to her for an hour or so, and then she flew in and spent all of Wednesday night at the house with us, shooting interviews with me, Katie, and the kids, and then filming us being normal. And if you know my boys, you can just take a wild guess at how THAT went!!! Thursday, she followed me in to work at Scott High's STRIVE summer program and then followed me,  JD Pooley, and Ingrid out to Cleveland for treatment.

(One of the funny parts here is that, about two weeks ago, JD said, "Hey, can I follow you out to Cleveland to do a video on what this routine is like for you?" and I was all, "Yeah, man, that'd be fun!" and we were talking about it being all guerilla-style with an iPhone and totally under the radar. That video is at https://www.youtube.com/watch?v=Pm4BD2QUjP4&feature=youtu.be , and it's really cool - it really captures the vibe of my days, and I hope, maybe demystifies this and makes it a little less scary!)

So, long story longer, we are all flying out to New York next Saturday to be on the Sunday morning show live. It airs from 0800-0900, and I have no idea where in that hour we'll be. We're planning on cramming as much New York into the 30 hours or so we're in town as we can; heading down to WTC and Battery Park so they can see Ellis Island and the Statue of Liberty, hopefully the East Coast Memorial Tablets (I mean, c'mon, it's me, you know I'm gonna lobby to see something WWII related), head back up to where we're staying in Midtown, and get them to Times Square at dusk, do the show Sunday morning, and then...

Wait a minute. Did I just use the phrase "Do the show?" Do people really say that? Sure as hell, people like ME don't say that!!!! 

... and then poke around Midtown, maybe go up to Top of the Rock or Empire State Bldg to get them a real 'big city' experience before we fly back! 

All of this is why I've been kind of social media silent the past three days. Number one, we were busy as hell. Tuesday, we busted butt to get this place clean enough for the cameras, and then Wednesday and Thursday we were on the crazy schedule with Caroline here with us. I'm sorry if I have been sort of out of touch during this time! Number two, we were sure how long we needed to keep this secret or anything, but I got the all-clear yesterday, and we just wanted to sort of take a day to pinch ourselves and make sure, this is really happening, right?




We are so incredibly excited about this whole thing. More so, because of something that, at the time, seemed insignificant last weekend. Ever since we cut cable, we've had an Apple TV that streams old pictures to our TV when we're not watching stuff. Some pictures of the last trip Katie and I took to NYC, when she was about four months pregnant with Joey, were cycling through, and the kids were asking this and that about New York, and one of them asked, "Can we go to New York City sometime?" and Katie and I just laughed it off. Yeah! Right! No way, Jose! And then, here we are. Totally surreal. And, I think, totally not an accident. 

Every other Thursday


Diagnosed with renal cell carcinoma in April 2011, in the past four years Joe has parted with one of his kidneys (as well as its tumorous companion), and undergone extensive and experimental treatments at the Cleveland Clinic and University of Michigan Medical Center.

The current treatment plan includes bi-weekly trips to the Cleveland Clinic—a round trip of over 200 miles. He’s been making these bi-weekly journeys for over a year now and there is no end in sight.

More: http://alittlebirdie.org/136

Tuesday, June 9, 2015

Meant to do

“This is what you were meant to do.”

It was said to me this week, twice. I said it to someone, once. And meant it.

###

I’ve written in this space quite a few times about the magic of the fallen hero project. Saying these names, researching these lives, watching kids make connections to the past; it charges the atmosphere. It electrifies particles. It brings things back for people, and brings people back for people. It heals.

Ever since the Blade article ran a couple weeks ago, and was reprinted in the Dayton paper, I’ve been getting a lot of calls. Some are vets. Some are vet’s kids. Some are interested members of the community. They send things; lots of books about the war, and from the war. One lady sent doll furniture a relative made in a POW camp. A flag. A uniform hat. Some medals.

Sometimes they send something less tangible, yet more real.

Thursday, Hazel in our main office put a call through to my classroom from a lady whose dad had attended Waite, but left early to join the Army in World War II. She was wondering if I could help him get his diploma.  As I talked with her, it didn’t sound promising. She could give me her dad’s name and birthday, but nothing as far as company, regiment, division, much less serial number.

I told her this wasn’t my first rodeo with diplomas, and that there’s a process we have to follow, and it takes a while. She was totally cool with that. I hung up with her, and promised to call back at the end of next week to get the ball rolling. On a whim, I decided to go over to our records office and pull his permanent file – yes, they exist. And one of the myriad awesome things about Waite is that they exist going back nine decades, and they exist in the building.

I’d post a pic of this transcript, but I’m afraid even 75 years on, that might be a FERPA violation. At the bottom of the transcript are notations in red that I’d never seen on a transcript before, “4 sem credits for basic trg,” “1 sem credit Investigator 301 under British supervision,” and then the gobstopper: “Graduated Oct. 1, 1945.”

So, I thought, story over. He got it. He forgot about it.

Except he didn’t. I’ll spare the details, but Hazel put me in touch with a lady at the Board, who put me in touch with a man at the BGSU archives, and he pulled the Board minutes from the fall of 1945. Sure as hell, there’s our guy listed with a bunch of other veterans, whose diplomas were granted… but not necessarily delivered. I went from my classroom to my principal’s office to see if maybe we could get the gentleman in our graduation ceremony on June 5, and he said, without a blink, let’s do it.

Just a half hour after I told this lady I’d be back in touch with her in a week to start the process, the process was essentially done, except for one small detail: He has to say yes. So Wednesday morning, we’re meeting with this man – this HERO – to ask him to do one more courageous act in a lifetime full of them. As I learned in records I scoured from NARA last night, he was taken prisoner by the Germans at Kasserine Pass, survived a grueling trek north to Stalag IIB in Prussia, endured two years in that work camp, and then pulled through a three MONTH forced march of 14 miles a day as the Germans tried to keep the prisoners ahead of the advancing Red Army. Will he take a 100-yard walk to accept a diploma, and send a more powerful message to our seniors than any speech could ever convey? That’s the one remaining question.

###

When I called the daughter with the news we could make graduation happen this week, near the end of the call she told me “God’s telling me to tell you that you’re doing what you’re meant to do.”

Independent of that, in the main office this morning, Hazel told me, “You’re doing what you’re meant to do.”

Same words.

Same source.

Same magic.

Same tears.

###

There is a spirit that moves through this project. I don’t mean this in an intangible way. I mean that the spirits of Paul Boyle, Willard Begel, John Kulp, Joey Vanasky, Budd Frazier are quite literally (and yes, I know what literally means) moving through this project, moving through us.  I’ve talked about this with a good friend. We both feel it. I know others feel it, too.

THEY are the ones doing what they’re meant to do, right now,right here, seven decades after death.  Is there an afterlife? You tell me.

THEY are moving me. THEY are moving these kids through the Fallen Hero projects. THEY drive a woman to call the school after she sees a piece on the 5:30 news. THEY spur a 70-year-old lady in Springfield, Ohio to send me a soldier’s French-English phrase dictionary.

I found myself wondering this week: If I were healthy, if I were cured, what would I do with this? Find a way to teach the WWII class all day? Go full time helping people find their relatives' stories - and fix their histories? Where are THEY leading me with this?

###

This morning, a colleague and friend asked how, on the last day of regular classes, I liked my first year at Waite. I couldn’t help but to smile.

I thought I came over for my reasons. And on some level, I did. But I think I came over for THEIR reasons, too. I don't think I could do it anywhere but here.

###

We are all called to something greater than ourselves, all of us, something big that we can’t even understand sometimes. Something that excites us. Moves us. Makes us part of something. Sometimes it's hard to hear that call.

This morning, one of the greatest men I know, who was a student my first couple years at Rogers, was sworn in as a Toledo Firefighter. He’s always had a passion for what they do, and the brotherhood of the firehouse, and the call to serve and save.

I got to see him for only a couple minutes before I had to get back to school. I told him the only thing I could think of. That THEY could think of.

You’re doing what you’re meant to do.

Friday, April 17, 2015

Occupational hazards

written by Joe

I am a history teacher. This comes with a few occupational hazards. I am a cancer patient. This, too, comes with some hazards, only one of these being actual cancer, and some of them magnifying the hazards of being a historian.

In the past eight days, my life has been a whirlwind of travel, gathering research information, finding a couple bombshells (literal and metaphoric), getting lost in the past, traveling, planning, teaching, treatment, and traveling. What there hasn’t been time to do is to think. To process.

History, I tell my students on the first day of class, is the recording and interpretation of past human events. So many words there… Recording. Interpretation. Past. Human. Events. And like Faulkner said, the past is never dead. It isn’t even past.

In nearly every facet of my life, I have been grappling with history for the past week, and to some degree, my place in it. There is much that I found in Washington that I can talk about freely on social media, and some that I cannot. There is some that I should discuss, and some that I should not. So you’ll have to forgive me for being a little vague as I get into this.

Paul Theophane Boyle is my superhero. He is my Captain America. He has been for more than half of my life. I do pretty well at recording the past human events of which he was a part, but it’s exceptionally hard for me to interpret them, because he is, and will always be, larger than life to me. Interpreting the events of his life, no matter how hard I try to do otherwise, is always done through icon-tinted glasses. I want him to be a hero.

As fate would have it, the more I learn about him, the more this seems to actually be the case. I remember being quite skeptical of Uncle Bill Boyle’s story of Paul’s death. It seemed too perfect. But then I found the AARs. And the Monan and Gravelyn memoirs. And then I got to communicate with Stan Bielen. Last week, I found the maps. Most importantly, I found that faded blue document awarding Paul the Combat Infantryman Badge that he never got; a CIB that would have automatically become a Bronze Star after the war.

As I sat at the National Archives a week ago this morning, I had tears in my eyes and I my hands were shaking. I mean, this was pretty much it, right? This was the proof, incontrovertible proof that Paul wasn’t just a hero in my eyes, that he was (or, if the madness of combat hadn’t fouled up the paperwork before he died, should have been) a bona fide hero, with the paperwork and medals to prove it.
So there it is. My relative’s a hero. Story ends. Except that it doesn’t.

In that paperwork, and in all of the memoirs I have read,there are some names that stand out time and again as people who didn’t perform very well in combat. Men who failed at missions they had advance notice would fail, and men died. Including Paul. What I’m struggling with now is this: As I put together a lesson plan about the lessons of the hedgerows, do I name names? And the reason I struggle with this? Capt. X – mentioned by name quite a bit –is probably someone else’s treasured, storied uncle. It’s possible that Col. Y– mentioned by name for incompetence – is the family legend that got some relative through the darkest days of his life.

I’m struggling with this issue mightily. I think about it when I wake up in the middle of the night.

Which parts of the past are best left in the past?

Is it possible to be interpret past events in such a way that you maintain each person’s dignity?

What do we do when our interpretations of past human events have the power to wound?

Is it our duty to be honest? Or to maintain honor? Can we do both?

My heart aches with this stuff. I am probably more sensitive to these than I have been in a long while. I remember when Samantha and I were  at the British cemetery in Bayeux, and there were German soldiers buried there; 6th Fallschirmjager – same unit Paul was fighting when he died, and I remember saying to her, one of these could be the guy who pulled the trigger – and I can’t even be mad. If I can’t push injury on those guys, how can I even consider pushing injury on the guys on our side who made brutally bad decisions?
Where do we get that? Where does it come from?

I suppose all of these are questions we all have to ask ourselves at some point or another. They’re questions I have really tried to focus on this week, which has been a week where it’s difficult for me to focus on much of anything. I’m especially having a terrible time trying to focus on the work I need to do on Paul as I try to decide how to do this in a mindful way. And I think this comes back to the occupational hazards of being a cancer patient. Remember learning about Erikson’s psychosocial stages in your undergrad psych courses? Identity vs. Confusion? Generativity vs. stagnation? Integrity vs. despair?

I sat in a colleague’s class this week while her student teacher taught her psych class, and all of the Erikson stuff came back to me, and I had the horrifying dawning that I’m going through those last two stages concurrently, if that’s even possible – trying to define my role in my work at the same time I’m trying to look back on it. It’s like trying to blow bubbles in a wind tunnel.

Today, my scans came back with no change. I’ll throw some bravado on my left arm like a shield, and deflect things a little bit longer.  I’ll work on Paul’s story, because keeping him alive is the legacy I guess I’m trying to build. I need him to be a hero for me, but more importantly, I need him to be a hero AFTER me. What would Cap do? How would Steve Rogers solve this?

I hate to be the guy who writes “I could go on…” as a conclusion, but it’s midnight, and I’m exhausted after treatment and travel today. I sure wish I had the answers tonight.


-----


If you have not had a chance to see Joe's plans of running 50 miles to raise funds for Dr. Rini's research, you can fin it here.

Thursday, March 26, 2015

Every second counts; 50 mile race to beat kidney cancer

This June, I will finish the Mohican 50-mile endurance run/hike in the hills of central Ohio. Why? To prove something to myself, certainly. But I want to make it for something else, too.

First, I want it to again raise awareness that diagnosis doesn’t mean death – and that every minute counts in our lives. But second, I want to do it to raise money for the Cleveland Clinic’s kidney cancer research. The easy thing to do would be to ask for dollar donations. But that wouldn’t be enough fun. What’s fun is making a game of it for you, and an added motivation for me.
So here’s the plan: Fifty miles is a LONG way. If you started in my mom and dad’s in Grand Rapids… you’d run to the Indiana border, and keep going two miles. If you started in my driveway in BG it would put you at Cedar Point. If you went straight up, you’d only be 12 miles from space. SPACE!!!
Now, let’s establish that I am really SLOW. Erosion moves faster than me. It took me 6 hours, 36 minutes to finish my marathon, which was a mere 26.2 miles. So, let’s do some math…
6 hours 36 minutes = 396 minutes… 396 min / 26.2 miles = 15.2 minutes/mile

Let’s be honest: I’m not going to be anywhere near that “fast” for a race that is hilly, on single-path trail, twice as long, and probably hot, possibly rainy. Not even close. As I pulled up results from last year’s 50-miler, the last guy in across the finish line took a smidge over 19 hours. Let’s go to the math!
19 hours, ten minutes = 1,140 minutes = 21.6 minutes / mile. 


I don’t think I will be THAT slow. But I don’t know how much faster I can be. I DO know that I’ll need a good kick in the butt to keep going when every part of my body will be telling me to quit.

So let’s make it interesting. I need a speed goal to shoot for, and you all want to help beat kidney cancer.
How much will you pledge, per minute, to motivate me to get under 1,140 minutes? Let’s say that the fastest I can go is my marathon pace, 15.2 min/mile. That would bring me in at 760 minutes or 380 minutes under the 1,140 limit. So if you bet a dollar a minute, you’d be on the hook for $380 (380 x $1.00). If you bet 50 cents a minute, $190 (380 x $ .50=$190). A quarter would d cost you $95 (380 x .25= $95)– and that’s if I am the fastest I’ve been. So you’ll likely be on the hook for WAY less than that. I don’t care if you bet a dime, nickel, penny, whatever. What I need is some motivation while I’m out there, and if I can convince myself when my calf is cramping that I need to keep going to raise some coin for a cure, it’ll get me through the lulls. Every minute will truly count.  The race is just under three months away, and I need some motivation to get out and train, too!
This is how it works:
Click here to fill out the online form so we can gather pledges. 
After the race, we’ll calculate how much you’re in for and remind you to fulfill your pledge. Your actual donation will NOT come through me, but will go directly through the secure Cleveland Clinic website. The Clinic has set up a fundraising page for this effort.

Friday, February 13, 2015

Miracle Drug: One Year On

"Of science and the human heart
There is no limit
There is no failure here sweetheart
Just when you quit"
- U2, "Miracle Drug" (2004)

One year ago today, a very nervous-seeming nurse set an IV line into my left arm, and I was infused with ipilumimab and nivolumab for the first time. In the year since Valentine’s Day 2014, so much has changed in many ways, but so little has changed in others.

When I sat down in that infusion room at the corner of the Taussig building, my muscles were still sore from the inaugural Winter Soldier run. That run anticipated the moment I’d sit in that chair and let the two-drug combo course through my body. More accurately, it anticipated the moments that would come after; a menu of possible side effects ranging from annoying to painful to frightening. No matter how much Dr. Rini and Laura informed me – and believe me, they DID inform me! – I don’t know if anything could have prepared me for the changes the drug would bring to me psychologically and physiologically.

The easy stuff to describe is the physiological stuff. It is sort of funny that only now, in the rear view mirror, do I truly appreciate exactly how bad the first four months on the treatment were. Those first four months, I was on the combination of two drugs. I wish I could provide you with a play-by-play of how things unfolded during that time, but a lot of it is(thankfully) lost to me – chalk that up to the ‘memory loss’ side effect. WhatI have, instead of fully-formed memories from last winter and spring, are vignettes.

###

It is the day after treatment. I meet Bernie Kosar. Oddly, I will meet him three times this year. It is a couple days later. There is a ton of snow on the ground. I go for a 5k run, because this is easy. No problem. I have dodged the side effects.

It is early March, and my sister and her family are in for my dad’s birthday. I’d just had my second treatment. They warned me that if side effects presented, I’d need to get in touch with Doc & Laura immediately to get on Prednisone. I am face-down and moaning on the rug in mom and dad’s living room for hours, and my head is splitting open, and there is a pain behind my eyes as if someone is trying to drill their way out from my brain. That night, I go on 60 mg of Prednisone. I don’t sleep a full night for a week. I stay on prednisone. I am still on prednisone.

It is later in March. The Prednisone is a blessing and a curse. Once it kicks in every day, it takes away the swelling behind my eyes,in my head, and in my spinal cord. My mornings are foggy. I am edgy and manic sometimes. I don’t sleep well. But the real blessing is that Prednisone has stripped away some of my filters. For too long in life, I have been a nice guy who goes along with whatever to avoid conflict. I am pushed a little too far,and I start calling things out as what they are. When the meds kick in, I return to passivity, and try to bring peace back. But the genie is out of the bottle in my head, and I know I need to make changes in my life, and stand up for something for once.

Winter drags into what should be Spring. It snows this April. The pain behind my eyes is getting worse,and I get dizzy near the point of passing out one night on a walk downtown. I haven’t run in two months now, my longest layoff in three years. I try a couple times and it hurts. I have appointments with neurologists, looking at swelling in my brain. I have appointments with ophthalmologists, neuro ophthalmologists.They peer inside my eyes, a window to the soul, and they find my optic nerves inflamed and angry, the cause of my blurred vision and dizziness and near faints.I drive to one of these appointments having to take breaks every 20 minutes because I am afraid of passing out behind the wheel. The next time, I have the good sense to have one of my best friends from work drive. I only realize now,in retrospect, exactly how scary it was for a month or so.

Spring is coming after a long winter, and it is May. They have withheld treatment for a while because of the side effects. We go to weddings, family functions, parties, and I remember little. My profession is driving me to the edge of madness, maybe even over the edge. Things I could deal with healthy, I simply cannot deal with sick. I get infused for the first time in a long time. Doc and I agree, we want to get all four doses of the double-drug cocktail in before the window closes. Situations at work spiral out of control. I get treated again before MemorialDay. Sam and I travel to Youngstown to remember Joey Vanasky, in what is probably the last Memorial Day observance from his boyhood church. I cry, and I cry more. It feels like everything is ending – graduation of some of my favorite kids; knowing I am leaving Rogers; friends moving away. A friend whois full of life dies in an accident. On the outside, I’m more or less maintaining a façade of normalcy, inside I am wondering if I can do this treatment for much longer. It is June, and I have my last treatment

And

Suddenly

The

Sun

Starts

To

Shine

Again.

They withdraw the ipilumimab, and maintain me only on nivolumab. The optic nerve swelling and light sensitivity goes away. The headaches begin to abate. Memory loss remains an issue; concentration remains a serious issue; Prednisone remains high, and I have incredible bursts of energy.One day I swim two miles, then go for a six mile run. Another day I mow five lawns before lunch, because I feel so good I just can’t stop. I herniate three disks in my back. I go up to the cottage and swim across the lake, but I can’t pick up my kids. That afternoon, I get a phone call – I’m going to Waite High School in the fall! I bid some professional and personal friends teary goodbyes, and despair that I’ll never see them again. I make new friends. A new school year starts, and purple and gold become my go-to colors. I start taking pictures of my new, very old school. I fall in love with the school and community, quickly, madly, deeply. Imake more new friends, and I laugh at lunch every single day. I go home happy every night. We have birthdays, anniversaries, holidays, and activities with the kids. Oh! Do we have activities with the kids! We deal with the fact that our little girl isn’t so little, and we adjust. I look at Katie sometimes and wonder how I got so lucky. We look at each other and wonder how we got old. I silently thank God that I’m getting older.

I go to Cleveland every two weeks for infusions of nivolumab. They run into a mostly-pleasant, if budget-draining, pattern: I bail out of school at the beginning of 4th hour. I hop on 280 to the turnpike. I arrive in the garage at 9600 Euclid in Cleveland just in time.  They take my blood, I pee in a cup, I have a physical, I get an IV, we wait on the drug to get mixed, and they start the drip. About 30 minutes in, I get a terrible headache. About 15 minutes from the end, I feel like someone’s sitting on my chest. I pay for my parking. It’s rush hour. I inch my way toward home, and stop at E. 79th to get a pork shoulder sandwich at Hot Sauce Williams. I’m not only the sole white dude in the place, I’m the sole white dude in a 1600-meter radius most nights. I think about segregation. I drive home. I top off Ingrid’s tank on the ‘Pike.Most nights, I pat her on the dashboard, and thank her for another job well done. If I’m lucky, Barry or Jaz are working at DQ, and I get that small cone with sprinkles at the end of the rainbow. I am tired. I drag ass the next day at work. I sleep a bunch. And by Monday, I’m ready to rock it.

It is winter again. I have been building my miles again after getting PT on my back. I’m swimming. I’m running. I am stronger again. I am becoming leaner again after nearly a year on prednisone. I decide to run and hike a 50-miler in June to raise money for Dr. Rini’s research. My scans are inconclusive for effectiveness of the drug; many other patients are seeing their disease recede into memory. I am jealous of them. I am on parish retreat team. We meet monthly, and we laugh, and cry, and try to put together a meaningful program. The Holy Spirit hijacks that program, and it ends up being absolutely magical. Some 50 people pray over me, and I feel like it may be the Vita-Rays that activate the Super Soldier Serum. My training picks up again,and I train with purpose.

It is the one-year anniversary of the Winter SoldierMarathon, and it’s the beginning of the biggest winter storm of the year. JD and Amy and I trudge out into a driving wind, and the spirit is on the wind,blowing ice pellets into our faces. I thank God that I’m able to get out and run, even if I'm slower than glaciation. I do smart stuff. I do stupid stuff. Sometimes I focus. Sometimes. I drift off, and can barely remember where I am. In the first two weeks of February, I lose my car at work… twice. I start looking to the future again. I think about those scans coming up in a month, and with faith and wonder, allow myself to dream that the tumors will retreat. I work hard to be more like Captain America, in body, spirit, and constitution. I thank God for all of you. For your prayers. For your posts. For your thoughts. I hope that I am worthy of them.